Update: Tilly had her transplant on Sunday 23rd Feb and it appears to have gone well! She will be intensive care for the next week so everything crossed for Tilly and her family.
Every so often you hear a story that really affects you in some way and this was the case when the IT Manager at Sexey’s School, Dave Hill, told us about his 9 month year old grand-daughter, Tilly.
Tilly, pictured below, was born with the very rate liver condition, Cystic Biliary Atresia. When only 18 days old, she underwent a lengthy operation which looked hopeful. Unfortunately, a few months later it became obvious that it had not worked and that Tilly’s liver had deteriorated significantly. After spending weeks in a number of Children’s Hospitals, Tilly joined the liver transplant list in August 2013.
Tilly is now 9 months old, eating solids and cutting her first teeth just like other children her age. She still, however, waits for the donation of a liver so that she can finally have the chance to get better. In support of Mr Hill and Tilly, Sexey’s School are holding a 24 Hour Cyclathon to raise money for the Children’s Liver Disease Foundation who support young people suffering from liver disease and their families, as part of the charity’s Big Yellow Friday.
The event has been endorsed by Lord Sebastian Coe and the school have managed to get Mhari Spence, World Champion Modern Pentathlete and Olympian to attend the event as a special guest.
The cyclathon, that takes place on Friday 7th March, will involve members of the school and local community taking thirty minute shifts on one of a number of static bikes, culminating in the Bishop of Taunton, Peter Maurice and Tilly’s two grandfathers taking on the final half an hour. In support of Dave, Tilly and the Children’s Liver Disease Foundation we have donated an Asus Memo-Pad Tablet and really hope that we can encourage others to help them reach their £2000 target. .
If you, like us, have been touched by Tilly’s story, please use the link below to sponsor the amazing cyclists! If you would like to contribute in another way, please get in touch and we will provide you the necessary contact details